Gary finished another week giving himself daily shots of Zilbrysq. I’ve always said he is the smartest man I’ve ever … Continue reading Week Two Down

Yet another shot has been added to Gary’s routine…Zilbrysq. We are hoping that this drug in conjunction with his Vyvgart … Continue reading One Week Down…

I went back to review my last post and realized I hadn’t posted for March! My goodness the time goes … Continue reading Puzzle Pieces…

Although February is a short month it has been filled with adventures. How dull life would be without them! Gary … Continue reading February 2024

Here we are already nearing the end of January. Where does the time go? Gary had an appointment with his … Continue reading A New Year…

Gary received his 2nd dose of Rituximab on Wednesday, November 15. Imagine a rollercoaster ride…this is the part where you … Continue reading The Rituximab Journey Week 3

Tomorrow marks two weeks since Gary received his first loading dose of Rituximab. While the first days after were somewhat … Continue reading The Rituximab Journey Week 2

Nov. 1 – Gary received his first Rituximab infusion. Going in for this infusion he was at an ADL score … Continue reading The Rituximab Journey Days 1-6

What a busy month! We attended the MGFA Conference at Methodist here in Houston. We enjoyed meeting other people like … Continue reading My Warrior

Here it is October which is the beginning of Gary being able to spend more time outdoors. Heat is a … Continue reading The Adventure Continues…

When I started this blog I never dreamed how many people it would reach. I can’t count how many times … Continue reading Faith

Gary reminds me so much of this little blue engine. Every day I do believe I hear him under his … Continue reading The Little Engine That Could

This summer has been full of challenges! As I mentioned in an earlier post, Gary took a hard fall February … Continue reading Challenges accepted and conquered…

I’m blessed to have my favorite MG Warrior beside me every day. I’m amazed at his daily positive attitude and … Continue reading June…The Month of MG Warriors

Gary and I always say we are on the rollercoaster of life. Our ride most recently has been from the … Continue reading Inhale…Exhale…

Isn’t it Dolly Parton who says, “If you want the rainbow, you gotta put up with the rain”? That describes … Continue reading Enjoying the Rainbows in Life…

I looked back too see when our last post was…WHERE DOES THE TIME GO? Here it is mid April already! … Continue reading I Will Trust In You…

Gary has been on his new medication, Imuran, now for two weeks with no side effects. Tomorrow he ups his … Continue reading Safety net? Bubble Wrap? Both??

What a beautiful Monday morning! We had a great weekend and now look forward to the week ahead. Gary sat … Continue reading Excitement in Simple Things…

Hard to believe January is almost over! As always the rollercoaster adventure here continues. Gary saw his pulmonary doctor who … Continue reading Don’t Worry….Be Happy….

New Years Resolutions…Gary and I have talked about what goals we wanted to set for the new year. Our list … Continue reading A New Year…2023

And time for celebration as Gary has finally tested Covid negative. What a ride this has been! November 13 Gary … Continue reading It’s a Beautiful Morning….

Our first date was at Chrystal Chandelier in New Braunsfels, Texas to see and dance to George Strait, and we’ve … Continue reading Dancing Through Life…

Life continues to be wonderful. The weather has been cooler which allows Gary to enjoy being outside more, our family … Continue reading Listening and Trusting…

and what a ride it is! It has been two weeks since Gary’s last dose of Vyvgart. The positives: 1. … Continue reading The rollercoaster ride continues…

Celebration is in order as we finally were able to get his Vyvgart started again! Woo Hoo!! This round has … Continue reading All Smiles

Gary’s last Vyvgart treatment was June 27, 2022. So much has happened since then. We believe when someone has a … Continue reading Rough Waters Yet Smooth Sailing…

Gary’s last Vyvgart infusion was June 27th. So far he is holding steady though the ADL score shows increasing numbers. … Continue reading If at first you don’t succeed…

The rollercoaster ride Gary and I are on would put any amusement park ride to shame! So many twists, turns, … Continue reading What a ride!

Things were beginning to get a bit scary right before Gary’s most recent Vyvgart treatment. We were seeing symptoms we … Continue reading A Sigh of Relief

It will have been 40 days since Gary’s last infusion when he receives his next round. While we had hoped … Continue reading 40 days…

It has been three weeks today since Gary’s last Vyvgart treatment. **The positives: No wheelchair, walker, or cane, and breathing … Continue reading Staying Afloat

This past Tuesday marked the end of the first round of Vyvgart infusions for Gary. Gary went to his first … Continue reading The First Inning Towards Winning the Game…

Gary had his 3rd out of 4 Vyvgart infusions today. What an adventure this has been! The positives… breathing, speech, … Continue reading Two steps forward, one step back

As I wrote in my last post, Gary received his first dose of the new drug Vyvgrt with high hopes. … Continue reading I Can See Clearly Now…

Today is the day Gary tries a new medication. This isn’t the first time he has changed medications; it’s the … Continue reading Just A Spoonful Of Sugar…

We just received the call…Gary is scheduled to receive the new FDA approved drug Vyvgart!! It appears he will be … Continue reading Anticipation…

Gary finally has his new wheels!! Such excitement! It is a Nitro Duet Function Transport Wheelchair and Rollator Rolling Walker. … Continue reading Hot Wheels

That’s my guy! Nothing stops him. Does he get upset at his situation? Of course he does! The emotional aspect … Continue reading The Little Engine That Could

Such excitement as we just ordered the Nitro Duet Rollator and Transport Chair for Gary. As I type I am … Continue reading Speed Racer in the making

IVIG stands for intravenous immune globulin and is made from pooled immunoglobulins from the plasma of healthy donors. It works … Continue reading Fill ‘er up

“I’m still here” as he points to his head. I find that interesting as I can see he is still … Continue reading Manual Drive

As I mentioned previously, Gary is beginning to see an increase in his symptoms. Elmer Fudd voice, vision difficulty, breathing … Continue reading Another Adventure!

Blessings come in all shapes, sizes, and forms. One of our very first blessings showed up in the form of … Continue reading Blessings…

How nice it would be if it were that simple for Gary! Now that we had a diagnosis the next … Continue reading Spinach…it worked for Popeye!

The first question we asked was what is Myasthenia gravis. Google says it is characterized by weakness and rapid fatigue … Continue reading Myasthenia What???

We FINALLY had an answer…Myasthenia Gravis. We always said we could fight and conquer anything; we simply had to know … Continue reading BINGO!

Gary and I spent the weekend in the RV. I had learned how to hook up, tow, unhook, and setup … Continue reading Let’s Do The Monkey Walk

Gary spent the following weeks healing from his surgery. So many tales he can tell about that adventure which would … Continue reading Elmer Fudd Returns

March 11, 2020 Gary came home from work and in his Elmer Fudd voice said he was unable to swallow … Continue reading We Have An Answer!

Back in 2019 I noticed Gary would have to stop occasionally when walking. He always said it was to observe … Continue reading Elmer Fudd and the Ticker