Another Adventure!

As I mentioned previously, Gary is beginning to see an increase in his symptoms. Elmer Fudd voice, vision difficulty, breathing issues, balance issues, fine and large motor skill issues, and difficulty swallowing. He spoke with his neuromuscular doctor today who has said he is a good candidate for the new FDA approved drug Vyvgart. He is excited to be her first patient to receive this treatment as he has always had a love for new, innovative things.

While we are excited, we are also nervous. Many unknowns with this new drug. What sort of side effects will he have if any? How long before he sees improvement of symptoms IF there will be improvement? How much worse will he get before the medicine does its job IF it does its job? So many questions. The doctor is increasing his prednisone in the meantime which should provide some help unfortunately it will also create extra weight. He says this added weight will give the chickens more room to sit while he gives them their daily treats! Always looking on the bright side!

Despite all the questions we know God is in control and continue to have faith that regardless what happens, we are blessed.