Staying Afloat

It has been three weeks today since Gary’s last Vyvgart treatment.

**The positives: No wheelchair, walker, or cane, and breathing is not as labored.

**The will get better in time items: He is beginning to choke more when swallowing, breathing while not as bad is becoming difficult again, he is wobbly when standing/walking at times, vision is still an issue. However, we have discovered that when these items show up, his recovery time is MUCH better. Before treatment he would end up having to stop and relax/nap for the rest of the day when these symptoms showed up. That is a HUGE positive in our book!!

One drawback to this new medication is it makes him more susceptible to infections. First infection…ear. Thank goodness it wasn’t anything more serious! He takes a lot of precautions to stay healthy, and is blessed that he continues to be so.

He began water physical therapy yesterday and loved it. Said he could really feel a difference. Not sure if the attempted underwater tricks and the dead whale act were what the physical therapist had in mind, but she hung in there like a trooper and kept the exercises going! XD

As far as when his next Vyvgart treatment will be…that’s an unknown. He keeps a journal of his symptoms along with a once a week MG-ADL Score. When they both get to a point where he feels it is time, we let his doctor know and plan the next treatment. He is hoping to make it through June. We are so thankful he has been given this opportunity to try Vyvgart as it has changed his life in positive ways.

As Gary reminds us not only in his words but also how he lives each day to the fullest with a positive attitude…WE ARE BLESSED