The First Inning Towards Winning the Game…

This past Tuesday marked the end of the first round of Vyvgart infusions for Gary. Gary went to his first Vyvgart infusion in a wheelchair…on his last infusion he used his walker. If that alone isn’t testimony, I’m not sure what is!

He is required/encouraged to keep a weekly MG-ADL Score of his symptoms. Before treatment his score was a 13. Week one of treatment it was a 9, week two a 6, week three a 9, and week four a 7. His goal is to have a score of 0 which indicates no symptoms. We know that day is coming; we just have to continue to have patience. If the score begins to increase, we know it’s time for another round of Vyvgart…typically not before 30 days from the end of the last one.

Symptoms that refuse to let go: Eyes, eyes, eyes…. droopy and slightly blurry, some shortness of breath but not nearly as bad as before treatment, and some muscle weakness making getting dressed in the morning somewhat difficult. However, compared to before treatment, he is MUCH BETTER.

I do have to remind him quite often to stop attempting marathons. He feels refreshed and thinks he can do most anything. After attempting, his body tells him otherwise.

Heat continues to be his worst enemy. We have been researching ways for him to enjoy the summer months at the beach. Driving the golf cart at 200 mph down the edge of the water was his first idea. While cleaning the sand off myself and the cart, he quickly learned that was not the best idea! Back to the drawing board!

We continue to be so thankful Gary was given this opportunity to try Vyvgart. Not a day goes by that he doesn’t remind anyone who will listen that HE IS BLESSED