The Rituximab Journey Week 2

Tomorrow marks two weeks since Gary received his first loading dose of Rituximab. While the first days after were somewhat of a rollercoaster ride, things have settled somewhat. His neuromuscular doctor increased his Prednisone to 60 every other day since Gary was still struggling, especially with breathing. We started that increase on Saturday. He goes in tomorrow for his second dose of Rituximab and have been told this is where we should really begin to see improvement. Such excitement! 🙂

Speaking of excitement…have I mentioned how our God works in wonderful ways? We have to remember that it’s His timing – not ours. Patience and Faith are so very important. I had mentioned sometime back that Gary did not get approved for the portable NIV machine since he has a main one here for nighttime. While disappointed, we knew we were just going to get creative with the one he has and all would be fine. Two days ago I received a call that Gary has been approved and the machine is on its way to our house! A pulmonary therapist will be coming by to teach him how to use it and will regularly monitor his progress. Isn’t this exciting?? Funny how life changes and simple things such as getting approved for a portable NIV is cause for celebration! HA!

Gary’s blood pressure and sugar levels have stabilized and running their normal for him numbers. The dizziness is gone; however, the muscle weakness and breathing makes the cane and “portable chair” part of his daily accessories. He isn’t choking as much and his eyes seem to be improving. I believe this is nothing but wonderful and the best is yet to come!

As always life is good and we are so happy to be on this journey together. As Gary always says…

I Am Blessed